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Completed
NCT00128960
Quality of Life in Patients Who Have Undergone Stem Cell Transplant
Conditions: Long Term Psychological Affects on HSCT
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: No
Enrollment: 173
Sponsor: National Institutes of Health Clinical Center (CC)
Location: National Institutes of Health Clinical Center Bethesda Maryland
Summary
This study will evaluate the long-term functional status, psychosocial adjustment and quality of life of patients with different types of diseases and conditions who have had an allogeneic (donor) stem cell transplant. Information from this study may help patients and families know better what they may expect long-term after transplant and will help health care workers improve services to aid in patients' recovery.
People 18 years of age or older who have had an allogeneic stem cell transplant three or more years before the start of this study may be eligible to participate.
Participants complete a series of questionnaires once a year for three years. The questionnaires take about 40 minutes to complete and include information on patient demographics, patients' physical, social, and emotional functioning, spiritual well being, pain, mental health, general health, fatigue, and other areas of health-related quality of life. The questionnaires are completed at home or during normally scheduled follow-up visits to the NIH.
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Eligibility Criteria
* INCLUSION CRITERIA:
Patients surviving three years or more from the date of first allogeneic HSCT provided at the Clinical Center, NIH.
Age greater than or equal to 18 years old.
Ability to comprehend the investigational nature of the study and provide informed consent.
Able to read and speak English or Spanish.
Life expectancy of at least 6 months.
Source: ClinicalTrials.gov (NCT00128960). StuddyBuddy aggregates publicly available trial information.