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Recruiting
NCT03910465
Children and Adults With Chordoma
Conditions: Chordoma
Sex: All
Ages: 2 Years – N/A
Healthy volunteers: No
Enrollment: 300
Sponsor: National Cancer Institute (NCI)
Location: National Institutes of Health Clinical Center Bethesda Maryland
Summary
Background:
Chordoma is a rare type of bone cancer. It occurs in the skull base or spine. Researchers want to study people with chordoma in different ways. They hope this will help them design better future treatments and supportive care studies for this disease.
Objective:
To learn more about chordoma by looking at its clinical course, how it appears on imagine scans, and how it responds to therapies and treatments.
Eligibility:
People ages 2 and older with chordoma who are enrolled in NCI protocol 19-C-0016
Design:
Participants will be screened with their medical history.
Participants will have a visit to examine their disease. This will include:
* Physical exam
* Neurologic exam
* CT scan and MRI: Participants will lie on a table. The table will slide into a machine. The machine will take pictures of the body.
Participants will have other tests every 6-12 months:
* Smell test
* Surveys to assess their emotional, physical, and behavioral well-being and needs
* Cognitive function tests
Participants or their home doctors will be contacted every 6 12 months. They will be asked to provide information about their disease. This could include test results and imaging evaluations.
Some participants may be asked to come to the clinic for more visits.
Eligibility Criteria
* INCLUSION CRITERIA:
* Ability of subject or Legally Authorized Representative (LAR) to understand and the willingness to sign a written consent document.
* Subjects with radiographically or histologically documented chordoma
* Age greater than or equal to 2 years old
* Subjects must be enrolled into NCI protocol 19-C-0016: Natural History and Biospecimen Acquisition Study for Children and Adults with Rare Solid Tumors .
EXCLUSION CRITERIA:
-None
Source: ClinicalTrials.gov (NCT03910465). StuddyBuddy aggregates publicly available trial information.
