Nursing-Driven Primary Palliative Care for Urban-Dwelling African Americans With Chronic Lung Disease

In prior work, this research team developed a telehealth primary care model (TIPC), designed in close partnership with patients and clinicians to address a widespread increase in telehealth use during the COVID-19 pandemic. Researchers will test the TIPC intervention to assess palliative care (PC) support for patients with chronic obstructive pulmonary disease (COPD) among a population of urban-dwelling, African American (AA) persons over the course of 15 months.The aims of this study are to 1) evaluate patient, caregiver, and clinical team perspectives of feasibility and acceptability of the TIPC model with urban-dwelling AAs with advanced COPD, and 2) explore the impact of TIPC intervention on knowledge and completion of advanced care planning (ACP) and on hospice and healthcare utilization patterns in the target population, as well as on additional quality of life (QOL) endpoints, and compare these between individuals participating in the intervention group and control group.

Inclusion Criteria:COPD DiagnosisAge 18 years or olderSmartphone capability/Telehealth technology accessExclusion Criteria:Traumatic Brain InjuriesIncarcerationHomelessnessDevelopmental disordersPregnancy