Improving Transition Care for Adolescents and Young Adults With Type 1 Diabetes

The purpose of this research study is to evaluate a transition preparation program designed for adolescents and young adults (AYAs) with type 1 diabetes (T1D). This transition program will support AYAs as they prepare to transition from pediatric to adult endocrinology medical care and will also include a caregiver. Results from this study will inform clinical recommendations regarding self-management best practices for AYAs with T1D prior to transitioning to adult medical care.

Inclusion Criteria:AYA:Type 1 Diabetes diagnosis for at least 1 year (as documented in medical record)16-22 years oldEnglish speakingChildren's Hospital of Richmond patient (Division of Pediatric Endocrinology)must have a caregiver willing to participateCaregiver:Age greater than 18 yearsProvides care to AYA and willing to participateExclusion Criteria:AYA:Non-English speakingSignificant psychiatric, cognitive, medical or developmental conditions that would impair their ability to complete assessments and/or engage in diabetes self-care behaviors (e.g., malignancies, psychosis, intellectual disabilityHospitalization for depression, suicidal ideation or other psychiatric disorder within the past 12 months. Life time history of psychotic disorderMedically-induced diabetes or diagnosis of diabetes other than type 1 diabetes.Currently pregnant, pregnant within the past 6 months, currently breastfeeding or planning to become pregnant within the next 12 months.Another member of the household (other than the participating parent) is a participant or staff member on this study.Participation in another research study that may interfere with this study.Previous participation in the SHIFT pilot studyCaregiver:Non-English speakingSignificant psychiatric, cognitive, developmental conditions that would impair their ability to complete assessments and/or engage in supporting the AYA with diabetes self-care behaviors (e.g., psychosis, intellectual disability)Another member of the home (not AYA) is a participant/staff member on current studyParticipation in another research study that may interfere with current studyPrevious participation in SHIFT pilot study