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NCT05669729
A Survey to Assess Participants', Caregivers', and Nurses' Use and Understanding of Educational Material on Velaglucerase Alfa (VPRIV) Home Infusion
Conditions: Gaucher Disease
Sex: All
Ages: 2 Years – N/A
Enrollment: 60
Sponsor: Takeda
Summary
The main purpose of this survey is to determine participants', caregivers', and nurses' understanding and use of educational material (EM) on VPRIV home treatment.
EM includes an infusion diary and guide and an emergency plan related to VPRIV infusion given at home for Gaucher disease.
The survey is conducted in European countries.Data will be collected directly from participants, caregivers, and nurses in form of a questionnaire, electronic or paper.
Eligibility Criteria
Inclusion criteria:Gaucher disease participants who receive VPRIV® for home infusion and their caregivers.Home infusion nurses administering VPRIV® to participants with Gaucher disease at home.Exclusion criteria:Potential respondents will be excluded if they have conflicts of interest with the survey (e.g., if they are employed by regulatory bodies, or pharmaceutical industry).
Source: ClinicalTrials.gov (NCT05669729). StuddyBuddy aggregates publicly available trial information.