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Completed
NCT05736497
Care Plans for Cancer Predisposition
Conditions: Genetic Predisposition
Sex: All
Ages: 12 Years – N/A
Healthy volunteers: No
Phase: NA
Enrollment: 177
Sponsor: Children's Hospital of Philadelphia
Location: Children's Hospital of Philadelphia Philadelphia Pennsylvania
Summary
Develop and evaluate acceptability, feasibility, and preliminary efficacy of digital care plan and accompanying text message reminders for children and adolescents with a known Cancer Predisposition Syndromes (CPS).
Eligibility Criteria
Inclusion Criteria:
Parents
1. Parent or Legal Guardian of a patient with a known cancer predisposition syndrome diagnosed within the last 5 years
2. Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)
3. Appropriate to approach per oncology team/cancer predisposition team
4. No cognitive impairment limiting ability to complete measures
5. Ability to read and speak English fluently
Adolescent/Young Adult (AYA) probands
1. Child proband with a known cancer predisposition syndrome diagnosed within the last 5 years
2. Ages 12+
3. Received care at the Cancer Predisposition clinic at the Children's Hospital of Philadelphia (CHOP), or other medical institutions (does not need to be receiving follow-up care at CHOP)
4. Appropriate to approach per oncology team/cancer predisposition team
5. No cognitive impairment limiting ability to complete measures
6. Ability to read and speak English fluently
Exclusion Criteria:
* Not meeting any of inclusion criteria
Source: ClinicalTrials.gov (NCT05736497). StuddyBuddy aggregates publicly available trial information.