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Completed
NCT05986305
Improving the Health of Parents and Their Adolescent and Transition-age Youth With Intellectual and Developmental Disabilities
Conditions: Intellectual Disability
Sex: All
Ages: 11 Years – 27 Years
Healthy volunteers: Yes
Phase: NA
Enrollment: 406
Sponsor: University of North Carolina, Chapel Hill
Location: The Carolina Institute for Developmental Disabilities Carrboro North Carolina
Summary
This study will determine the comparative effectiveness of Go Act, a tailored advocacy curriculum versus Peer parent-directed peer learning for increasing parent activation for parents of youth with intellectual and developmental disabilities. Second, it will determine the comparative effectiveness of the two study arms for improving parent and youth health outcomes while assessing whether parent activation serves as a mechanism that mediates their effects on health outcomes.
Eligibility Criteria
Inclusion Criteria:
Parents
* Raising an adolescent or young adult child (age 11-27), with diagnosed or suspected intellectual or developmental disability
* Able to attend group sessions
* Able to give informed consent
* Resident of any state except New York or Illinois due to electronic signature law
Youth
* Being between the ages of 11 and 27
* Having diagnosed or suspected intellectual or developmental disability
Exclusion Criteria:
Parents
• Having evidence of emergency mental health needs
Source: ClinicalTrials.gov (NCT05986305). StuddyBuddy aggregates publicly available trial information.