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Active Not Recruiting
NCT06065527
Future Planning and Well-Being for Individuals With Intellectual Disabilities and Family Caregivers
Conditions: Intellectual Disability
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: No
Phase: NA
Enrollment: 1050
Sponsor: Northwell Health
Location: Cohen Children's Medical Center New Hyde Park New York
Summary
This study will compare the effectiveness of a web-based long-term care planning tool (Map Our Life) partnered with traditional case management services to traditional case management services partnered with an attention-control Centers for Disease Control and Prevention (CDC) sponsored website on health promotion for people with disabilities. The goal of this clinical trial is to promote long-term care (LTC) knowledge and planning among individuals with intellectual/developmental disabilities (IDD) and their family caregivers to improve social supports, health, and quality of life outcomes.
Eligibility Criteria
Inclusion Criteria:
* Family caregivers of individuals with intellectual and/or developmental disabilities living in a community setting
* Ability to speak English or Spanish
* Access to a tablet, computer, or smartphone
Exclusion Criteria:
* Speaks a language other than English or Spanish
* Does not have access to a tablet, computer, or smartphone
* Caregivers who care for individuals with intellectual and developmental disabilities who are less than 10 years of age.
* Special populations such as: fetuses, prisoners, or other institutionalized individuals
Source: ClinicalTrials.gov (NCT06065527). StuddyBuddy aggregates publicly available trial information.