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Completed
NCT06222112
Experience Life, Needs and Expectations of Families of Older Polyhandiccaped Persons
Conditions: Polyhandicap
Sex: All
Ages: 35 Years – N/A
Healthy volunteers: Yes
Enrollment: 35
Sponsor: Assistance Publique Hopitaux De Marseille
Location: APHP Hôpital Marin de Hendaye Hendaye
Summary
The general objective of PolyAGE is to explore the life experience of familial caregivers of aging persons with polyhandicap (\>= 35 years). The investigators will question parents (objective 1) and siblings (objective 2) about the experiences, the social representations, the needs and the expectations, as well as the mechanisms associated with their choices about their children with polyhandicap. The objective 3 is to co-analyze parents' and siblings' experiences regarding the aging of their relatives with polyhandicap.
Eligibility Criteria
Inclusion Criteria:
* Mother or father (\>=18 years) of a with severe polyhandicap aged 35 and over at the time of inclusion
* Person (\>=18 years) having at least one parent in common with a person with a severe polyhandicap aged 35 and over at the time of inclusion
* Person agreeing to participate after having been informed of the study's objectives and procedures
Exclusion Criteria:
* Parents and siblings whose inclusion criteria concerning the Persons with severe polyhandicap are not fulfilled
* Parents and siblings who refuse to participate
Source: ClinicalTrials.gov (NCT06222112). StuddyBuddy aggregates publicly available trial information.