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Enrolling By Invitation
NCT06458959
Exploratory Trial of a Pediatric Web-Based Care Planning Guide
Conditions: Developmental Disabilities, Developmental Delay
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: Yes
Phase: NA
Enrollment: 223
Sponsor: University of Illinois at Chicago
Location: University of Illinois Chicago Chicago Illinois
Summary
Infants and toddlers with developmental disabilities or delays use early intervention (EI) for rehabilitation services. Yet, poor quality of EI services is pervasive, particularly for racially and ethnically diverse and socially disadvantaged families. A key lever to improve EI quality is family-centered care, an evidence-based approach that is grounded in family engagement for shared decision-making. This project is motivated by the need to give families a smart and connected option for engaging in the design of the EI service plan for their child. This project upgrades and tests an evidence-based and innovative electronic solution that helps families to organize and share their priorities for change and ideas for goal attainment with professionals, so as to ensure fit of the service plan with their needs.
Eligibility Criteria
Inclusion Criteria:
* read, write, and speak English,
* have internet and telephone access
* identify as a parent/legal guardian of a child enrolled in EI for 3+ months
Exclusion Criteria:
* do not read, write, and speak English
* do not have internet and phone access
* do not identify as a parent/legal guardian of a child enrolled in EI for 3+ months
Source: ClinicalTrials.gov (NCT06458959). StuddyBuddy aggregates publicly available trial information.