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NCT07412002
Quality of End-of-Life Care for Children With Cancer
Conditions: Childhood Hematopoietic and Lymphatic System Neoplasm, Childhood Malignant Solid Neoplasm
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: Yes
Enrollment: 2425
Sponsor: Children's Oncology Group
Location: Kaiser Permanente-Oakland Oakland California
Summary
This study examines the role of access to care, patient/family interactions with the healthcare system, and stress in explaining variations in quality of end of life care. The data collected from this study may help researchers develop a model for identifying patients at risk of low quality end of life care as well as recommendations for potential future interventions.
Eligibility Criteria
Inclusion Criteria:
* Index Child (COG Registered Patient):
* Must be deceased
* \< 18 years old at time of death
* Diagnosed with any oncologic condition
* History of enrollment on Stratum 1 of APEC14B1, Project:EveryChild
* Note: history of treatment on a COG therapeutic trial is not required
* Resided in the United States, including Puerto Rico, as evidenced by most recent address, at the time of death
Bereaved Parent(s):
* Must be a parent, legal guardian, or caregiver (biological or non-biological) of an eligible Index Child enrolled on APEC14B1 with current Consent to Future Contact (e.g., from the APEC14B1 Part B Consent)
* Self-reported confirmation of familiarity with the care received by the Index Child in the last month of their life
* Bereaved parent must understand English or Spanish (written and/or spoken)
* Must be a parent/guardian/key contact from the Index Child's APEC14B1 Future Contact study record or must be referred by one of the APEC14B1 contacts
* Bereaved parent must be \>= 18 years old at the time of ALTE24C1 study enrollment
Regulatory Requirements:
* Bereaved parent must provide verbal or implied informed consent
* For all participants, all institutional, FDA, and NCI requirements for human studies must be met
Source: ClinicalTrials.gov (NCT07412002). StuddyBuddy aggregates publicly available trial information.