Assessing Transition Practices for Children With Disabilities: Pathways to a Successful Adulthood

Conditions: Patients Consulting in PM&R Pediatric Clinics Needing Continuity of Care in Adulthood, Spina Bifida, Cerebral Palsy, Spinal Cord Injury, Spastic Paraplegia, Stroke

Sex: All

Ages: 15 Years – N/A

Healthy volunteers: No

Enrollment: 128

Sponsor: Centre Hospitalier Universitaire de Saint Etienne

Summary

Transition to adult care is a purposeful and structured movement of youth with complex disabilities from child centered to adult oriented services. This complex and potentially challenging period requires careful planning. The investigators aim to examine the transition practices in the University Hospital of Saint Etienne. The study employs a mixed methods approach, combining: * A retrospective evaluation : Analyzing transition data over a 10-year period. * A prospective qualitative study : Conducting semi-structured interviews with patients who have already transitioned within our clinic.

Eligibility Criteria

Inclusion Criteria: * patients who had been diagnosed with conditions such as cerebral palsy, neonatal stroke, polyhandicap, spinal cord injury, spina bifida, or other genetic syndromes. * patients who had visited the pediatric rehabilitation department at least once between 2012 and 2022. Exclusion Criteria: * neuromuscular disorders, * any cancer diagnoses, * autism spectrum disorders, * patients still in pediatric care,

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View on ClinicalTrials.gov

Source: ClinicalTrials.gov (NCT07706517). StuddyBuddy aggregates publicly available trial information.