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NCT07732608
PROSPECT Registry for Individuals at Risk for Genetic Prion Disease
Conditions: Genetic Prion Disease
Sex: All
Ages: 18 Years – N/A
Healthy volunteers: Yes
Enrollment: 1000
Sponsor: University Hospitals Cleveland Medical Center
Summary
PROSPECT is a prospective observational registry and longitudinal natural history study of adults at risk for genetic prion disease.
Eligibility Criteria
Inclusion Criteria:
* Age ≥18 years
* At risk for genetic prion disease based on family history
* Willing to comply with all study procedures including genetic testing and longitudinal follow-up
* Resident in the United States
* Sufficiently proficient in English to participate in all study procedures
Exclusion Criteria:
* Lacking capacity to independently consent at time of initial enrollment
* Symptomatic of prion disease at time of initial enrollment
* Inability to provide a backup contact
Source: ClinicalTrials.gov (NCT07732608). StuddyBuddy aggregates publicly available trial information.
